Friday, April 11, 2008

Endoscopy

Yesterday Della had her endoscopy (camera down the throat) to see what was going on in her tummy. We had the sweetest Irish nurse who was wonderful with her, but unfortunately Della started to have a panic attack the second we walked into the pre-op room. They had to give her Versed (sp?) to help calm her down. It is similar to Valium. The Neurologist said that she has symptoms of Post Traumatic Stress Disorder. This was very evident at our last Dr. appointment when she tried to bite our Pediatric Gastroenterologist. Nice. Anyway, Della was put under for the procedure as well as for the insertion of a pH probe. This consists of a small wire that is inserted through the nose and goes down into the stomach. It measures the amount of acid Della's stomach is producing and then sends the information into a small compuer that is plugged into the other end of the probe. Needless to say Della didn't want anything in her nose and she had to be put into arm restraints to prevent her from pulling it out. We made it 24 hours and then we went back to CHOC this morning where they took out the probe. The worst part was the tape that was all over her face and head. Pulling it out of her hair was so hard to watch. Luckily we had a great Child Life Specialist who brought her therapy dog in with Della. It was a good distraction for her and she was able to pet the dog and cry at the same time. Anyway, we got some pictures back from the endoscopy and there is some evidence of erosion in her lower eshphagus and top of the stomach. Of course I would rather my daughter not have any reflux, but I am glad something was found and that the whole preocedure wasn't for nothing. Next week we meet with our Dr. to go over the results of the pH study, the biopsies, and the endoscopy. I am excited at the prospect of finally being able to do something that may help her development to speed up. Fingers crossed!

This is Della's famous "pouty face." She does it whenever she doesn't like what is going on. The most common cause is the things we make her do in physical therapy.


Why is she even smiling?

Endoscopy pics. I tried to get a close up of the erosion, but it didn't turn out.

5 comments:

Amy said...

Hurray!! I'm so thrilled that they found something! I know after all those tests and appts to have it always come out to nothing is so frusterating! It's a starting point that you can build on. She is so sweet! Even her pouty face makes you want to give her a super big hug!

Lisa said...

Poor baby girl. Who knew someone so young could have PTSD! You and your family are so strong. I hope everyone is feeling a little better now that you know what's going on.

By the way, when are you guys coming up here?

Karin said...

We are looking at having one of these done in the near future too. I hope you are able to get some questions answered or at least some comfort if they can't be. Give your little one a hug for me. Sometimes the hospitals forget about the emotional and mental needs of their little patients. And you are left to pick up the pieces. I'm so sorry about her stress level with medical personnel.

Hope things get better...

Kimberly Bluestocking said...

I'm glad they found something so you can make a concrete plan instead of groping in the dark. And I'm glad Della had both a mommy and a doggie to comfort her. :)

The Papavero's said...

I absolutly LOVE her pouty face, she is just a doll, and looks soo much like your mom, its too cute! Im so happy they found something! And your in our prayers...we should get the kids together before you move, which by the way where the heck are you moving??