Yesterday Della had her endoscopy (camera down the throat) to see what was going on in her tummy. We had the sweetest Irish nurse who was wonderful with her, but unfortunately Della started to have a panic attack the second we walked into the pre-op room. They had to give her Versed (sp?) to help calm her down. It is similar to Valium. The Neurologist said that she has symptoms of Post Traumatic Stress Disorder. This was very evident at our last Dr. appointment when she tried to bite our Pediatric Gastroenterologist. Nice. Anyway, Della was put under for the procedure as well as for the insertion of a pH probe. This consists of a small wire that is inserted through the nose and goes down into the stomach. It measures the amount of acid Della's stomach is producing and then sends the information into a small compuer that is plugged into the other end of the probe. Needless to say Della didn't want anything in her nose and she had to be put into arm restraints to prevent her from pulling it out. We made it 24 hours and then we went back to CHOC this morning where they took out the probe. The worst part was the tape that was all over her face and head. Pulling it out of her hair was so hard to watch. Luckily we had a great Child Life Specialist who brought her therapy dog in with Della. It was a good distraction for her and she was able to pet the dog and cry at the same time. Anyway, we got some pictures back from the endoscopy and there is some evidence of erosion in her lower eshphagus and top of the stomach. Of course I would rather my daughter not have any reflux, but I am glad something was found and that the whole preocedure wasn't for nothing. Next week we meet with our Dr. to go over the results of the pH study, the biopsies, and the endoscopy. I am excited at the prospect of finally being able to do something that may help her development to speed up. Fingers crossed!
This is Della's famous "pouty face." She does it whenever she doesn't like what is going on. The most common cause is the things we make her do in physical therapy.
Why is she even smiling?
Endoscopy pics. I tried to get a close up of the erosion, but it didn't turn out.
2 years ago