2 years ago
Saturday, July 28, 2007
We had our big meeting with the Metabolic Doctors over at CHOC last Thursday and it went better than we could have hoped for! The Doctors went over her charts, blood work, pregnancy history, her delivery details, medical history, family history, why we had been concerned about her, and did a physical exam. They want to do a more extensive panel (blood test) to get a better picture of what is going on however, they were impressed with her progress in the past few weeks. After all of the medical jargon had been used, what seemed to be the 'main' Dr. turned to us and said in very plain terms that "Children with metabolic disorders regress and slowly their health deteriorates. Period. Della is progressing. Although her blood work has some abnormalities that could indicate something serious, I am looking at her and seeing the opposite. There is a chance that she could be normal however let's not draw any conclusions until we get some of these results back." I can't describe how happy we were to hear him say that. This is the first time that I have allowed myself to think that Della could come out of this relatively, well, normal. I try not to let this thought be too prominent, just in case.
Up next is Della's immunizations since she hasn't had any since she was 2 months old. We continue physical therapy, await the blood test results, and we will go ahead with the MRI on August 7th to look at the functioning of her brain. Again, I can't thank you all enough for the help, dinners, listening ears, and prayers given to our family. Hopefully we will continue to get good news.
PS Della enjoys eating prunes as you can see from the above picture. She is nearing 16 lbs and pulling out of the 20th percentile in weight. Sometimes I am disturbed at the amount of food she eats, but as long as she continues to open her mouth for more, I will continue to shovel it in.
Posted by Caitlin at 11:08 AM