Sunday, July 15, 2007

Della Update (and our 100th post)


First I wanted to thank all of you for your outpouring of support and love that has been given to our family. It has been such a great source of comfort to us and we really appreciate it. The above picture is of Della at the hospital last Friday before she had the tubes put into her ears. We had to be there at 5 am which is very early at our house. On top of Della being grumpy we weren't able to feed her anything until after the surgery. As you can imagine, she was pretty upset. A "child life specialist" came around with toys and included within them was the toy pictured above. It was a jungle scene that played a soundtrack of a stream. Della was fascinated and quickly stopped crying and soon fell asleep. Her surgery went well and we are anxiously waiting to see how her development improves.

On Thursday we met with a child development specialist/physical therapist named Tim Healy. I have to say that it was a fascinating and educational experience. He is currently writing a book on how touch affects a child's emotional and mental development (i.e. the differences between children who are held vs. children who aren't. Think Romanian orphanages). He and Dr. Brazelton are friends and have done a lot of research together. Anyway, he said that he didn't detect any symptoms of a mitochondrial disease and I couldn't help but breathe a HUGE sigh of relief. He also said that he didn't see any devastating deficits in her development. Dr. Healy will continue to follow her progress for one month. If she regresses or doesn't progress at a good pace, then she will start a regemin of therapy. So that was really good news.

For now that is all we know. I will do my best to keep people in the loop. Our next big appointment is July 26th with the Metabolic Specialists. Thanks again for all of those who have called, e-mailed, and helped us with Archer.

One more thing...I went and bought that Fisher-Price toy because it worked so well. At 2 am that night we heard the toy on and a few minutes later it shut off. Then we heard Della turn it back on again. Genius! I highly recommend that toy to anyone with kids. It's great because it hooks onto her crib. I found it at Target for cheaper that the $35 that it is listed for on that link.

5 comments:

Lisa said...

Caitlin,

I don't remember how I found it, but I have been reading your blog for some time and have really enjoyed keeping up with your family. My heart goes out to you and your family in dealing with Della's complications. Our little boy had a few problems in-utero, so we know how scary it all can be. I don't mean to undermine what you are going through, though. She's such a beautiful little girl and I loved reading about how affectionate she is. I hope I get to meet her and Archer one day! Good luck with everything, you will be in our prayers!

Lisa (Williams) Brown

Ana said...

I love that picture of Della...she looks so peaceful! You will have to teach me how to hold a baby to make them go to sleep like the doctor showed you. Rocky told me Chad calls the doctor the "Baby Whisperer". That is so funny! I am glad to hear that Della is doing better and please know that you guys are in our thoughts. If you need anything, time away, help with Archer, for us to bring you guys dinner...anything just let us know. :)

Kimberly Bluestocking: said...

I'm so glad the doctor had good news for you.

The picture is beautiful.

Amy said...

I love those fisher-price night light thingys. Nathan had one and it was so neat in the middle of the night to hear it go off like he was comforting himself with the music and the soft light. That picture of her is so sweet.

Tim and Anastacia said...

I'm so sorry we're not down the street anymore to help you out. But we are praying for you all, and we're relieved to know the doctor gave you some good news. Always know you can call whenever you need to, and if you guys ever head down this way for a little R&R, we'll take you to the beach!

Anastacia